All proceeds from Hilary Storm's "In a Heartbeat"e-book sales from this Thursday through Sunday will go to Micheal. He has a tough battle ahead and she hopes to help his family with some of the costs.
To buy a copy of In a Heartbeat go here
- Micheal's Story -
"As many of you know, I was diagnosed with Cystic Fibrosis as an infant, I am now 19 and I recently graduated from high school. Throughout my life, I have been in and out of the hospital for lung infections and other things related to my Cystic Fibrosis and Diabetes. In late August, 2012 I got very sick and my pulmonary lung function had been in decline ever since.
In November, 2012 I had a week long evaluation at Duke University Hospital, In January, 2013 my father and I relocated to Chapel Hill just outside of Durham in North Carolina to be close to the hospital. Since then it has been daily trips to the hospital for test, labs, procedures, education classes, the fitness center daily to try to build up weight and muscle for after the transplant. On March 26, 2013 I was put on the Transplant list. On April 5, 2013 I got my new lungs. Will continue to go to the Doctor appointments, clinic visit's, do lab work, the fitness center, learn about all the new medications I will take for the rest of my life. I will continue to be close to the hospital for 3 or 4 months until I can go home.
Even with insurance, transplantation is extremely expensive. We live 18 hours away from Duke University, so the travel and relocation back and forth for evaluations, work-ups, and the transplant will in itself cost tens of thousands of dollars, all of which must be paid out-of-pocket. Aside from this, we will have to cover the cost of co-pays, deductibles, doctor visits, and the costly immunosuppressant medications I will have to take for the rest of my life. All of this presents a challenge my family and I cannot meet alone."
To read more about Micheal go here
In November, 2012 I had a week long evaluation at Duke University Hospital, In January, 2013 my father and I relocated to Chapel Hill just outside of Durham in North Carolina to be close to the hospital. Since then it has been daily trips to the hospital for test, labs, procedures, education classes, the fitness center daily to try to build up weight and muscle for after the transplant. On March 26, 2013 I was put on the Transplant list. On April 5, 2013 I got my new lungs. Will continue to go to the Doctor appointments, clinic visit's, do lab work, the fitness center, learn about all the new medications I will take for the rest of my life. I will continue to be close to the hospital for 3 or 4 months until I can go home.
Even with insurance, transplantation is extremely expensive. We live 18 hours away from Duke University, so the travel and relocation back and forth for evaluations, work-ups, and the transplant will in itself cost tens of thousands of dollars, all of which must be paid out-of-pocket. Aside from this, we will have to cover the cost of co-pays, deductibles, doctor visits, and the costly immunosuppressant medications I will have to take for the rest of my life. All of this presents a challenge my family and I cannot meet alone."
To read more about Micheal go here
